The Hall family’s journey with ALD began when their son was just 1 month old. After a series of tests and consultations, they received the life-changing diagnosis: their son had X-linked Adrenoleukodystrophy, or ALD, a rare and serious genetic disorder. “You’re left terrified,” Taylor Hall, William’s mother, said as she reflected on the moment she received the phone call with her son’s diagnosis. “So the first thing you do is you go to Google even though you know better, but you don’t know anything. And the first thing that we saw was that it was fatal.”ALD is a disease that prevents the body from breaking down long-chain fatty acids, causing them to build up in the body and specifically target the brain and spinal cord. This buildup damages the protective membranes around nerve fibers, leading to neurological impairments and, if untreated, can result in life-threatening consequencesThe news left her feeling …
